UVLrx – Let there be light!

Whilst I was in California accessing intravenous antibiotics, I also tried various other alternative treatments. One of which was an 8 week course of UVLrx. This is a new cutting edge treatment for infection and virus load and is getting great results for patients with Chronic Lyme. Ideally it would have been more beneficial for me to have up to 20 treatments of this but due to lack of financial funds it just wasn’t possible.

 

 

This treatment is the first of this type of direct-to-blood intravenous light therapy treatment to be available. For each treatment an intravenous catheter is inserted into a blood vessel in my arm and the Polychromatic light source administers multiple wavelengths into the insertion site for 1 hour per treatment. Other light based treatments only deliver a single wavelength where as this treatment delivers 3, therefore increasing the potential for healing and for destroying unwanted pathagons. The UV light in this treatment is a powerful antimicrobial agent working against blood born pathogens in the body. The additional wavelengths delivered have been proven to repair damaged cells in the body and enhance the immune system.

 

 

Prior to starting this I was slightly skeptical as to how much it would help, but after seeing other patients get such great results I knew I had to give it a go. I can tell you though, I literally noticed the difference after the first treatment, and during sessions 3-5, I actually noticed the difference during the hour of those sessions. My energy levels over all increased and on occasions it was like I had been given a double espresso! I found my mental clarity improved, and with each treatment my brain fog lessened considerably. The brain fog is on-going, but I do feel as a whole it has lessened in severity and my cognitive abilities have improved. I noticed over time, a considerable reduction of inflammation and pain. This was apparent especially in the back of my head and base of skull and neck, which after having encephalitis was a really troublesome area. During sessions 6-8, I felt I did herx much more than previous sessions, and our thoughts on this were that we were reaching infections at a much deeper level. Maybe it was some of those super persistent bugs who thought they were getting off lightly after invading my body!

I had noticed prior to this course of treatment that my tremors were at a high level and the feeling of internal vibrations/jitters was quite intense, and again although this does still exist on a daily basis the intensity of these type of neurological symptoms are greatly reduced. I believe for myself personally that I was responding well to this cutting edge medical technology and had I been able to afford further treatments of this type, that I would have most likely continued to see positive results.

UV light treatment has been used for over 80 years and has been proven to make rapid readjustments to a variety of health conditions. I think it was only a matter of time before a machine of this nature was invented and I hope that with time it can aid many patients in their healing journey. I am really pleased that Gordon Medical Associates have invested in this technology as it is another option which is less toxic to the body than conventional medicine.

As a whole I feel this treatment has reduced both my viral and infection load and I wouldn’t hesitate to recommend this to another patient who is also suffering with chronic levels of pain and inflammation.

Big love, hope and light! Chantelle x

 

Advertisements

The last chapter of 2014

December seemed to completely fly by. Maybe it was all the distraction from the festive movies on the box and decorating the tree! I have always been a huge Christmas fan, maybe I was an elf in my past life who knows?! In an ideal world I would have been joining in with all the fun in the build up to Xmas, but for the second year running I really just didn’t have the energy for it.

I continued to suffer from an array of symptoms and there just didn’t seem to be any signs of relief from these. I was back on the antibiotics, now that the toxic load had decreased, and was starting back on the meds slow, and steady by building doses up little by little. I know that some of my symptoms were increasing due to the herxheimer reaction (die-off) and others were infections which were still determined to thrive in my body, finding me an ideal host! Really not very idea for me at all! This was a difficult time and I was spending increasing amounts of time lying horizontal and feeling generally weak and nauseous. When I am experiencing such exhaustion and pain, even showering becomes a mammoth task and sometimes that might be all I achieve in a day. Other days I am more able and can walk round the block and cook a meal, it is all just a lottery. I never really know form day to day how I am going to feel.

My Lyme Doctor and her team had put their heads together and came up with the next plan of action. It seemed out of all the infections I have it was currently the Lyme Borrelia bacteria and its partner in crime Babesiosis (Babesia) that were causing me the most problems. Babesia is a protozoan parasite that infects the red blood cells and it is extremely persistent. As it enters the red blood cells it matures and divides and within 1-2 weeks of incubation it starts to cause havoc. One of my first noticeable symptoms of this illness was night sweats, which started sporadically, until eventually occurring up to 4 times a night and were drenching in nature. This then escalated to myalgia, nausea, loss of appetite, air hunger and pressure headaches. Last year the GP also discovered I had developed low Iron levels, yet another common symptom of this co-infection and another daily pill to add to the pile! I sometimes still struggle to comprehend that this tiny tick has transmitted such aggressive infections into my body.  It has definitely been a shock to my system both physically and mentally!

The Morphology of Babesia – Photo Source: http://web.stanford.edu

On a more positive note, over Christmas I made it back to Cornwall to see my Family and some friends too. I was happy to be there in person even if the brain fog was making it difficult to be there in full focus. I spent most of my time in the house but made sure I I was wore my novelty santa jumber. I was able to live through the excitement of the festive period through the eyes of my little Nephew which was magical. I also won’t deny that a hug from my Mum and Dad, sometimes can make things feel a whole lot more bearable, even at the age of 30! I also tried to remember that although I am still stick, This Christmas I was in a slightly better place than the year before and finally in treatment and for that I am grateful.

On high-alert and feeling toxic! September – November 2014

In my last blog post, I left you with an update as far as August. Things were going fairly well and I was definitely feeling and seeing progress across my body, brain and general well being. This was obviously too good to be true and before I knew it, Wham! I seemed to hit another bump in the long lyme road, and it was for sure another uncomfortable ride!

IMG_5979

So you may be thinking what caused this downturn? Well, although we have no concrete evidence, we think the culprit was a vaccine. I was given this as part of some immunology investigations. Having vaccines with Lyme Disease is without doubt a questionable task, but these tests were important as I needed to see if I had inherited my Mums rare and complex Primary Immune Deficiency, Hypogammaglobulinemia. This causes an abnormally low level of immunoglobulins, the antibodies that help fight infection. Research has shown this can be ‘congenital’, present at birth or ‘acquired’, developed later on in life. It is vital that we determine wether or not I have this as it could effect my chances of recovery from Lyme, and it could mean I have to have regular intravenous immunoglobulins in order to support my bodies immune system.

Ok, so back to the vaccine…Approximately 4 hours after this, I felt very nauseous and lethargic. I headed straight for bed in an attempt to sleep this off and when I woke an hour later, I was experiencing excruciating pain in my shoulder where I had had the injection. Although it is common for pain after any injection, it was my whole shoulder and upper arm not just the insertion site. By early evening I was in so much pain, in floods of tears and unable to move my arm at all. The level of discomfort was off the scale, and I was having to physically support the weight of my arm even in resting position as  the general weight of my arm felt unbearable. I headed straight to my GP where my arm was put in a sling and I was prescribed stronger painkillers and anti-emetics. This was a ‘dead’ vaccine so I really didn’t expect any reaction at all, let alone this!

Within 3-4 days the pain had subsided considerably but I continued to feel totally wiped out, it was almost like I had regressed 6 months. The physical symptoms from Lyme and the Co-infections I was fighting had all seemed to creep back to a much more aggressive level. My night sweats were back with a vengeance, I had air hunger, heart palpitations and the headaches were constant. My adrenal gland function seemed to be playing up too. This can be a common occurence with chronic infection. From having this problem earlier on in the year,  I have become aware of certain symptoms which arise when this is happening. I notice I am a lot more alert in the evening when I should be winding down. I get a real sense of restlessness and almost an internal jitter. My sleep feels completely not restorative and I often feel like a zombie until about lunch time, not to mention the brain fog! My insomnia also increases and my appetite too. I seem to loose weight although noticeably eating more! You may be aware of the ‘fight or flight’ response, which is a process of the sympathetic nervous system, our bodies reaction to the stress it is under. Its like the body goes into high-alert and the hormones of the adrenals contribute to this process.

So with all this going on in my body I was advised by my Lyme doctor to briefly stop my antibiotics while my body had a chance to get to grips with the latest episode! I stayed off these for almost two weeks and then introduced them again one at a time. Unfortunately it was not before long and I was feeling worse again, I was now vomiting, having chest pains and can only describe the feeling as hitting a brick wall. It then became apparent that my liver had also become congested, so I had no choice but to stop all antibiotics, again. I was toxic, literally and it was too dangerous to continue to load my body with medication especially as my faulty detox genes meant I was not able to rid of any of the die off I was experiencing from the antibiotics. I got myself into full on detox mode. I increased my intravenous Vitamin C and Glutathione, had 30 minute epsom salt baths daily, drank copious amounts of lemon water and had regular castor oil liver cleanses. I also continued to take the herbal tinctures and tablets such as Itires, Apo-Hepat and Milk Thistle.

I had to stay off all medications until mid November and I found this really disheartening. All I know is that to rid my body of all these infections I have to preserver with long term antibiotic treatment, so to be told your body is not tolerating it is simply frustrating. With that aside, it wasn’t long before I got my head back in the zone and reminded myself that I needed to stay mentally strong, that this was just a blip and before long I would be back on track. It is not easy trying to be positive day in day out and don’t get me wrong I have my moments! I cry, I feel angry and I ask that rhetorical question ‘Why Me?’ Surely though I wouldn’t be human if I didn’t have these moments and thoughts every now and then. Being continuously ill is not easy. It also didn’t help that my 30th birthday was approaching! I always had expectations and plans for where I would be in life when I turned 30. What I had hoped to have achieved and what my future plans where. Well obviously getting bitten by a tick threw a huge spanner in the works and I could no longer follow a plan. Right now my plan is just to get through each day, just one at a time and do my best to do so with a positive attitude. I always remind myself it could be worse, and it could. I have a roof over my head, a supportive network of family and friends, and a doctor who is trying everything to fix me. At least I have a chance to get better. I am lucky I am still alive and yes, I may be in pain for the majority of that time, but I keep the hope that this won’t be the case forever.

“If you keep hope alive, it will keep you alive”